Life with a gastrostomy tube

Isla has had her new feeding tube for almost 3 weeks now so I thought I'd write an update and explain a little more about the third type of tube Isla will have in a few weeks time. Because Isla had open surgery and things were in the wrong place, her surgeon was unable to... Continue Reading →


Top 10 hospital stay essentials

We are no strangers to hospital stays in the Young household. Every time we are admitted, whether elective or emergency, there are always some things to take with us! So here are my top 10 essential items for a hospital stay with little ones. 1. Sling If I could only pack one thing, it would be this.... Continue Reading →


I've been meaning to write this one for a while but if I'm honest, it's only now that I understand what malrotation is and the full consequences for Isla. A malrotation is when the intestine does not 'coil' properly during development and instead it twists on itself, meaning things are not where they should be.... Continue Reading →

Feeding tube mark 2!

Isla has had her NG feeding tube since March. We've had many specialist appointments over the past few months and all seem to agree that there isn't going to be a short term fix. As well as struggling to drink any significant volumes, she also appears to aspirates thin liquids which is dangerous for her... Continue Reading →

Going abroad with an Isla!

Prep! We booked a holiday way back in February - before Isla had her palate repair and feeding tube. As it came around & it became apparent that Isla wasn't going to be able to be without the tube, I must admit I was a little nervous about going abroad. The main difficulty with the... Continue Reading →

Slings & pregnancy

*I am not a medical professional nor am I giving advice in this post, just my experience. Please seek the advice of your health care professional or local babywearing consultant/sling library if you have queries or concerns* I have carried Isabelle since she was a teeny tiny newborn. We have used most types of slings... Continue Reading →

Isla is ONE!

I cannot believe my amazing, determined little girl is one today. This week has been extremely emotional for me as I've been thinking back over her first year. It's definitely not been an easy one. We've contended with a NICU stay, separation, breathing difficulties, feeding difficulties, surgeries, hospital stays, sleep studies, scans, tests, cannulas, specialist... Continue Reading →

Exclusive expressing…. a year on!

I've previously written about my experiences of exclusively expressing for Isla as she couldn't breastfeed due to her cleft. Somehow, this week we've made it to a year and, rather fittingly, it's National Breastfeeding Celebration Week. We've overcome huge hurdles & donated 100000ml (3520oz) of milk in total this year. So this post are my... Continue Reading →

Life with a feeding tube 

Isla has had a feeding tube at two separate points in her life so far. When she was born, she was in the neonatal unit and couldn't feed at all initially so as well as being on a glucose drip, she also had an NG tube placed. Babies with a cleft palate often have no... Continue Reading →

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