Cleft Lip & Palate Awareness Week – an Isla update

It's Cleft Lip and Palate Awareness week! This is the third one since we have had Isla's diagnosis and probably a good time to write an update. Last year I wrote a post a day and I have reshared them on social media every day this week. One of my posts covered all of the... Continue Reading →


The most magical place

We booked a 4 night, 5 day trip to Disneyland Paris at the end of last year. We are huge Disney fans and when I found a great deal, after a pretty awful year for both girls, we decided they deserved a special treat. As usual, packing was a mammoth task in itself. We had... Continue Reading →

Pumping and slings!

I've discussed this topic so many times with a group of ladies who are part of an exclusive pumping Facebook group I am in. There is guidance and information pages for breastfeeding and bottlefeeding in slings. But what about when you need to pump but can't put the baby (or toddler) down? I decided to... Continue Reading →

Things tube feeding parents want you to know

Yes, we did try hard enough After palate repair, we tried every specialist bottle/teat combo imaginable, every cup, syringe feeding, different temperatures of milk, every feeding position imaginable, pain relief, thickeners, reflux medication, mixing milk with food, feeding little & often, feeding 3 hourly, topping up with the tube hourly, not topping up until the... Continue Reading →

Life with a gastrostomy tube

Isla has had her new feeding tube for almost 3 weeks now so I thought I'd write an update and explain a little more about the third type of tube Isla will have in a few weeks time. Because Isla had open surgery and things were in the wrong place, her surgeon was unable to... Continue Reading →

Top 10 hospital stay essentials

We are no strangers to hospital stays in the Young household. Every time we are admitted, whether elective or emergency, there are always some things to take with us! So here are my top 10 essential items for a hospital stay with little ones. 1. Sling If I could only pack one thing, it would be this.... Continue Reading →


I've been meaning to write this one for a while but if I'm honest, it's only now that I understand what malrotation is and the full consequences for Isla. A malrotation is when the intestine does not 'coil' properly during development and instead it twists on itself, meaning things are not where they should be.... Continue Reading →

Feeding tube mark 2!

Isla has had her NG feeding tube since March. We've had many specialist appointments over the past few months and all seem to agree that there isn't going to be a short term fix. As well as struggling to drink any significant volumes, she also appears to aspirates thin liquids which is dangerous for her... Continue Reading →

Going abroad with an Isla!

Prep! We booked a holiday way back in February - before Isla had her palate repair and feeding tube. As it came around & it became apparent that Isla wasn't going to be able to be without the tube, I must admit I was a little nervous about going abroad. The main difficulty with the... Continue Reading →

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